HEATKEYS

National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.

Global Genes Project is the leading rare and genetic disease advocacy organization in the world. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon...

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The Myotonic Dystrophy Foundation (MDF) is a patient advocacy group dedicated to leading and mobilizing resources toward effective management, treatment, and a cure for myotonic dystrophy, a common form of muscular dystrophy. This inherited disorder ...

GiveForward provides free, personal fundraising websites to raise money online for loved ones in need

The Choroideremia Research Foundation Inc, is an international, non-profit organization dedicated to raising funds to find a treatment or cure for Choroideremia, a rare inherited retinal degenerative disease that causes blindness.

Children?s Cancer Research Fund invests in lifesaving, leading-edge research in the prevention, diagnosis, treatment, and cure of childhood cancers and blood-related disorders.

Penn's Center for Orphan Disease Research and Therapy and Rare Disease Cycling announce a cycling event to raise money for world-wide rare disease research.