HEATKEYS

National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.

Home page of the National Human Genome Research Institute, the arm of the U.S. National Institutes of Health dedicated to advancing human health through genetic research.

The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORDR Web site provides informat...

Your source for reliable health information from the Federal government. Offering quick guides to healthy living, personalized health advice, and tips and tools to help you and those you care about stay healthy.

The Little Miss Hannah Foundation's mission to work with families who have young children with life-limiting rare diseases, undiagnosed complex medical needs, and terminally diagnosed children who have been placed in hospice or palliative ca...

The Rare Disease United Foundation Is a non-disease specific, state-based organization currently with communities in Rhode Island and Massachusetts.

CCHS Network

Kelly Anne Dolan Memorial Fund provides advocacy, education, information, and financial assistance to families of seriously ill or injured children in Pennsylvania, New Jersey, and Delaware.

CancerCare is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.

Raising awareness, providing resources, and offering support to make a difference in the lives of those affected by Pediatric and Adolescent Young Adult (PAYA) Cancer in Northeast Ohio.