HEATKEYS

National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.

The main objective of Rare Disease Day 2011 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.

Global Genes Project is the leading rare and genetic disease advocacy organization in the world. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon...

Jackson Laboratory researchers discover the causes and mechanisms of human genetic diseases and conditions.

The National Institutes of Health (NIH) has established a new center, called the National Center for Advancing Translational Sciences (NCATS). Currently, many costly, time-consuming bottlenecks exist in the translational pipeline. Working in partners...

Working together to promote rare disease legislation

The Rare Disease United Foundation Is a non-disease specific, state-based organization currently with communities in Rhode Island and Massachusetts.

Finding new approaches to diagnosis, prevention, and treatment of rare diseases and disorders - The National Institutes of Health Rare Diseases Clinical Research Network (RDCRN) was created to facilitate collaboration among patients and experts in ma...