HEATKEYS

The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORDR Web site provides informat...

HLH, Children with HLH, Parents with kids that have HLH

The eMedicine point-of-care clinical reference features up-to-date, searchable, peer-reviewed medical articles organized in specialty-focused textbooks, and is continuously updated with practice-changing evidence culled daily from the medical literat...

UpToDate is an evidence based, peer reviewed information resource, available via the Web and Mobile Devices. Our community includes over 4,400 leading physicians, peer reviewers, editors and over 385,000 users. UpToDate includes access to over 8,300 ...

Facebook is a social utility that connects people with friends and others who work, study and live around them. People use Facebook to keep up with friends, upload an unlimited number of photos, post links and videos, and learn more about the people ...

Prayers 4 Emily support forum for Emily who is fighting Lymphoma, HLH, immune disorder, SCIDS

HLH or Hemophagocytic Lymphohistiocytosis is a rare and potentially fatal immune disorder. How has HLH affected our family? We’ve lost two wonderful little boys to this horrible disease.  Our mission now is to help the families that will unfortun...

This sites provides information regarding Social Security Disability Benefits (SSI & SSDI) claims. Find out if you qualify for disability benefits and how to go through the disability application process.

Children

Serving infants to adolescents, Cincinnati Children

The Official Blog of Cincinnati Children's Hospital